Title |
Patient engagement in research: a systematic review
|
---|---|
Published in |
BMC Health Services Research, February 2014
|
DOI | 10.1186/1472-6963-14-89 |
Pubmed ID | |
Authors |
Juan Pablo Domecq, Gabriela Prutsky, Tarig Elraiyah, Zhen Wang, Mohammed Nabhan, Nathan Shippee, Juan Pablo Brito, Kasey Boehmer, Rim Hasan, Belal Firwana, Patricia Erwin, David Eton, Jeff Sloan, Victor Montori, Noor Asi, Abd Moain Abu Dabrh, Mohammad Hassan Murad |
Abstract |
A compelling ethical rationale supports patient engagement in healthcare research. It is also assumed that patient engagement will lead to research findings that are more pertinent to patients' concerns and dilemmas. However; it is unclear how to best conduct this process. In this systematic review we aimed to answer 4 key questions: what are the best ways to identify patient representatives? How to engage them in designing and conducting research? What are the observed benefits of patient engagement? What are the harms and barriers of patient engagement? |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 40 | 20% |
United Kingdom | 39 | 20% |
United States | 17 | 9% |
Australia | 5 | 3% |
Spain | 5 | 3% |
Ireland | 4 | 2% |
Greece | 2 | 1% |
Netherlands | 2 | 1% |
Italy | 2 | 1% |
Other | 7 | 4% |
Unknown | 75 | 38% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 121 | 61% |
Scientists | 48 | 24% |
Practitioners (doctors, other healthcare professionals) | 28 | 14% |
Science communicators (journalists, bloggers, editors) | 1 | <1% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 6 | <1% |
United Kingdom | 5 | <1% |
United States | 3 | <1% |
Netherlands | 2 | <1% |
Sweden | 1 | <1% |
Singapore | 1 | <1% |
Gambia | 1 | <1% |
Spain | 1 | <1% |
Congo, The Democratic Republic of the | 1 | <1% |
Other | 0 | 0% |
Unknown | 1066 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 185 | 17% |
Student > Ph. D. Student | 167 | 15% |
Student > Master | 144 | 13% |
Student > Bachelor | 83 | 8% |
Other | 62 | 6% |
Other | 202 | 19% |
Unknown | 244 | 22% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 238 | 22% |
Nursing and Health Professions | 130 | 12% |
Social Sciences | 123 | 11% |
Psychology | 81 | 7% |
Business, Management and Accounting | 34 | 3% |
Other | 183 | 17% |
Unknown | 298 | 27% |