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Challenges for health care providers, parents and patients who face a child hood cancer diagnosis in Zambia

Overview of attention for article published in BMC Health Services Research, May 2018
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35 Mendeley
Title
Challenges for health care providers, parents and patients who face a child hood cancer diagnosis in Zambia
Published in
BMC Health Services Research, May 2018
DOI 10.1186/s12913-018-3127-5
Pubmed ID
Authors

Mulima Walubita, Bornwell Sikateyo, Joseph M. Zulu

Abstract

Zambia is experiencing high prevalence of childhood cancer. However, very few children access and complete treatment for cancer. This study aimed to document the challenges for health care providers, parents and patients who face a child hood cancer diagnosis in Zambia, and their coping strategies. This was an exploratory health facility-based qualitative study that was conducted at a Paediatric oncology ward at referral hospital in Zambia. In-depth individual interviews conducted with fifteen (15) caregivers and seven (7) key informants were analysed using thematic analysis. Several challenges related to managing the childhood cancer diagnosis were recorded. Individual and family challenges were inadequate knowledge on childhood cancer, lack of finances to meet treatment and transport costs as well as long period of hospitalisation that affected women's ability to perform multiple responsibilities. Whereas challenges at community level were inadequate support to address emotional and physical distress and social stigmatisation experienced by caregivers. Health systems issues included inadequate specialised health workers, poor communication among health workers, limited space and beds as well as insufficient supplies such as blood. Cultural related factors were the belief that cancer is a product of witchcraft as well as religious beliefs regarding the role of faith healing in childhood cancer treatment. Coping strategies used by parents/ caregivers included praying to God, material support from organisations and church as well as delaying having another child. Addressing the challenges for health care providers, parents and patients who face a childhood cancer diagnosis may require adopting a systems or an ecological approach that allows developing strategies that simultaneously address challenges related to the individual, family, community, health system and cultural aspects.

Twitter Demographics

The data shown below were collected from the profile of 1 tweeter who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 35 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 35 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 7 20%
Student > Postgraduate 6 17%
Student > Doctoral Student 4 11%
Student > Bachelor 4 11%
Student > Ph. D. Student 3 9%
Other 5 14%
Unknown 6 17%
Readers by discipline Count As %
Nursing and Health Professions 8 23%
Medicine and Dentistry 8 23%
Psychology 3 9%
Social Sciences 2 6%
Immunology and Microbiology 1 3%
Other 3 9%
Unknown 10 29%

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 04 May 2018.
All research outputs
#11,457,465
of 12,889,468 outputs
Outputs from BMC Health Services Research
#3,966
of 4,282 outputs
Outputs of similar age
#233,261
of 269,130 outputs
Outputs of similar age from BMC Health Services Research
#1
of 1 outputs
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So far Altmetric has tracked 4,282 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 6.4. This one is in the 1st percentile – i.e., 1% of its peers scored the same or lower than it.
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